Pro-genetics in that certain defects limit the ability of a child to have an open future
Genetic Testing Moral Dilemma
How to balance patient autonomy & confidentiality v human suffering of those around them and moral claims of future children
Counselors are committed to a & c and yet are largely drawn to field to avoid/mitigate suffering
Some families with shared disabilities seek genetic counseling to create a child who will share their disabilities. Deafness, achondroplasia.
Tests nondirective counseling
Nat'l Soc of Genetic Counselors: Code of Ethics
1. Respect clients' beliefs, cultural traditions, inclinations, circumstances, feelings
2. Enable clients to make informed decisions. Help to eliminate coercion, show alternatives, seek to know consequences.
Skew toward autonomy
Desire to dissociate from eugenics
Avoid pro-abortion label
Few treatment options exist for genetic diseases
Intensely private nature of reproductive decisions
Generic decisions have major consequences for family
Deafness as example
If a couple, both deaf due to genetics, seeks genetic counseling in order to produce a deaf baby, must the counselor assist this process?