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the singe ISO standard that lays out much of what is required for the definition and maintenance of data elements; stops short of the entire requirements, but is the best set of rules available
Enterprise Vocabulary Service (EVS)
registry of terminology used by CDSR; created by NCI; includes SNOMED-CT, MedDRA, VA NDF-RT, LOINC, HL7, NCI Thesaurus
cancer Biomedical Informatics Grid (caBIG)
overseen by the National Cancer Institute Center for Biomedical Informatics and Information Technology; addresses the needs of all constituencies in the cancer community -researchers, clinicians, patients- to share data and knowledge, simplify collaboration, speed research to get diagnostics and therapeutics fro bench to bedside faster, and more cost-effectively; addresses a critical problem facing both basic and clinical researchers today; an explosion of data that requires new approaches for collection, management, and analysis; is widely applicable to other therapeutic areas
Activities of caBIG
development of Vocabularies and Common Data Elements; evaluate and integrate systems for vocabulary and ontology content development used throughout caBIG system. and establish a review process that classifies vocabulary into bronze, silver, gold categories with rigid rules for definition
Clinical Data Interchange Standards Consortium (CDISC) products
Study Data Tabulation Model, Operational Data Model; and The Clinical Data Acquisition Standards Harmonization (CDASH)
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