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DD2019

Terms in this set (20)

When did dphie adopt the cystic fibrosis foundation?
1957
How much money has dphie donated to research in the pursuit of curing cystic fibrosis
More than 1 million
What type of disease is cystic fibrosis?
Genetic
In the _________, the mucus clogs the airways and traps germs, like bacteria, leading to infections, inflammation, respiratory failure, and other complications.
Lungs
In the ___________, the buildup of mucus prevents the release of digestive enzymes that help the body absorb food and key nutrients, resulting in malnutrition and poor growth.
Pancreas
In the ________, the thick mucus can block the bile duct, causing liver disease
Liver
More than _____________ people are living with cystic fibrosis in the United States
30,000
More than _____________ people are living with CF worldwide
70,000
Approximately _________ new cases of CF are diagnosed each year
1,000
More than ________ of people with CF are diagnosed by age ____
75%, 2
More than half of the CF population is age ________
18 or older
The Cystic Fibrosis Foundation was founded in ________ by a group of parents.
1955
T/F: When the CFF was founded there were no treatments for CF
True
The Foundation's steadfast commitment to advancing CF research has helped enable _____ new treatments for the disease.
12
In _______, the Foundation announced that it was committing ______ million to the Infection Research Initiative, a comprehensive approach to improve outcomes associated with infections through enhanced detection, diagnosis, prevention, and treatment.
2018, 100
People with CF can have a variety of symptoms, including:
Very salty-tasting skin,
Persistent coughing, at times with phlegm,
Frequent lung infections including pneumonia or bronchitis,
Wheezing or shortness of breath
Poor growth or weight gain in spite of a good appetite,
Difficulty with bowel movements,
Male infertility
Since cystic fibrosis is a childhood disease, CFF coined the term _________ because CF is so hard for children to say.
65 roses
CF patients in the U.S. born between 2013 and 2019 can expect to live into their ________ with the treatments and research available.
Mid 40s
Cystic fibrosis is caused by the mutation of the________________, which is responsible for producing the CFTR protein.
cystic fibrosis transmembrane receptor (CFTR) gene
There are two common tests done to test for CF.
Sweat chloride testing, also known simply as the sweat test, measures the amount of chloride on the skin. Because CF interferes with the transfer of salt to and from cells, there will be an accumulation of salt in sweat.

Genetic CFTR testing is used to detect the most common mutations of the CFTR mutation. While there are over 2,000 CFTR mutations known to cause cystic fibrosis, the 23 included in the standard panel represent the most likely suspects.
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