Study sets, textbooks, questions
Upgrade to remove ads
Terms in this set (36)
"Racism and Research: The Case of the Tuskegee Syphilis Study"
"The Meaning of Illness"
"Consent as a Grant of Authority"
"Ethics of the Delivery Room"
"Epigenetics and the Environment in Bioethics"
"How Billing Relates to Patient Care"
"Debating the Cause of Health
"A Fatal Attraction to Normalizing
"The Social Construction of Disability"
"Introduction: Imagined Futures, (pg. 1-14)
"Ideology of Cure" and "Violence of Cure"
· History of bioethical injustices—how do attitudes, values, beliefs, ideologies effect medical practice and research?
o Tuskegee Syphilis Study
basically crazy how we let that happen. We valued medical research to help the public more than the individual health of these black men. We did not get their consent and did not give them the medicine we had.
A methodology used to resolve dilemmas arising in health care by appealing to abstract moral principles
· Phenomenological approach to understanding patient-physician relationship
o Different 'worlds'
o Eidetic or essential characteristics of illness
physician and patient encounter the experience of illness from "different worlds" each "world" providing a
horizon of meaning. such as focusing, habits of
mind, finite provinces of meaning, and relevance are shown to be central to the way these "worlds" are constituted.
physicians should not expect all diseases to fit their deintioin perfectly and should try to see how patients vary and live with their illness
have to also look at what the illness characteristics should be, helps determine between biological and psychological.
o Criteria for judging autonomy
Self rule, self governance
⁃ Personal autonomy: competency, making sure an individual is competent
—> awareness/understanding relevant info.
—> communication of a choice
—> appreciating the consequence
—> reasonability about treatment decisions
⁃ Autonomous choice: conditions of choice.
—> without controlling influences
Coercion, manipulation, deceit
⁃ Therapeutic privilege/exception: physician is excused from revealing info to a patient. Ex: suicidal behavior.
⁃ Waivers of consent
o Exercise of autonomy
o Grant of authority
o Power-over vs. power-to
loss/gain of power, fixing power imbalance with relatinships, equals, procedural,
Consent as a grant of authority
accepting this on some level, sharing in creative powers associated, trustee charge, substantive
(consent as something you want for yourself vs. consent as surrender)
· Pregnant Embodiment
opinions, notions, and ideas we have about pregnant women and what they go through.
pregnancy treated as a disorder rather than a natural bodily process. alienated by looks, male physicians,
· Individualist vs. Communitarian approaches to Bioethics
Dominant approach (individualistic) hellegers:
focus on individual patients body
threats from environment
externalization of disease
inlfluence of society is central
ecology (health of earth is correlated to human health)
interaction of environment
long term, dynamic
increased and diffused responsibility
molecular genetics (individual and our genetic body makeup) reflects an individualistic perspective and molecular epigenetics a communitarian view. (external, our community and enviornment)
· Environmental determinants of health
humans should be responsible for these
passing on illnesses to future generations due to nutrition and lifestyle health
· Structural competency
o What is meant by 'structure'?
o How is it differentiated from cultural competency?
o What are concrete ways to develop structural awareness and competency?
o 5 core competencies
how society is set up and organized, enduring patterns.
cultural: identifying people, cultural factors. How to engage with a patients, communication, linguistic competency
1. recognizing the structures that shape clinical interactions
2. developing an extra-clinical language of structure
3. rearticulating cultural formulations in structural terms
4. observing and imagining structural interventions
5. developing structural humility
· Medical billing and structural issues
⁃ Based on time spent with patient, skill required, patient acuity
Billing: form of documentation: Electric MR
Default: high-test level cost
Incentive to bill up —> "productivity"
· Racial health disparities and structural issues
⁃ There are racial disparities in health
⁃ Race natural economics
⁃ Race specific genetics
inequalities happen before even see a doctor
· Norm Daniels' 'Normal Human Functioning'
tells us our needs vs. wants/extras.
nature naturally occurring, fixed by nature.
related to course of life needs, definable norm
(absence of disease/disability)
· Biomedical Model of Health and Disease
absence of disease
deviations of normal, natural functioning of a typical member of the species.
· Mode vs. Level of function
mode: way a function is achieved
level: degree/intensity of the performance of achievement.
mode of function determines the level of function
· Models of Disability
person has the disability, more objective and centered on physical stance of the body
society disables the person. how the person fits in the society. fixed as a disadvantage, social --> cumanitarian approach
· Ideology of Cure
disability activism: demanding accessibility and rights for those who are disabled.
ableism: abled body. you are superior than disabled. prejudice against those who are disabled
body-minds: body and mind are connected
repetition of a certain rhetoric with an understanding of beliefs.
restoration, fixing, back to normal, utilized in conjunction with defect to eliminate and eradicate
ideology of defect: short coming, deficiency. lack, imperfection, normative laden
· Violence of Cure
enforces expectation of eradication and elimination
· Eradication/Elimination of disability
1. eliminating the possibility of certain people and future generations
2. elimination of certain conditions and limiting certain possibilities of people with those conditions.
3. elimination people fo the present, individualization (conjoined twins). risking life or taking life in the present
· Futurity and disability ('desired futures')
see disability as a future no one wants, disgrace. who or what is included/excluded.
derecognizes value, who or what will make up this society
4 basics of principalism (AJNB)
1. Autonomy: individual rights, free will
2. Justice: fairness and just distribution
3. Non malfeasance: do no harm (negative duty)
4. Beneficence: positive duty to provide benefits. (to do good)
trouble any foretoken notions on disability
- impairment is separate from disability. Disability is the interaction with the social embviormentm. social often overlooks biological impairment: way to change disability is changing physical environment. but we dont think about chronic pain/fatigue.
affects everyone, political and social distinction, ideological basis.
disability and ability conform binary (relational to each other)
only one can be described in relation to another (constituted by one another)
potential site for imaginative reconstruction
fluidity of value and disability
explore creation of them.
Sets with similar terms
Patient Centered Care
Anth 215 Terms
Health Promotion Exam 1; Cultural Competency and C…
Other sets by this creator
Pt. Management exam 1
UPPER LIMB EXAM 1
Other Quizlet sets
Clinical Exam 3
Statistics Exam 1 Review
Test 3; Alternation of Generations and F…
History Chapter 4 test